Genuine, caring and
courageous, with a great sense of humor mixed in. That would be a good
way to describe Carol Alperin, 69, of Maple Grove. Alperin’s life has
been full of challenges that make her both interesting and
inspirational. Navigating through life is difficult for most people.
Alperin has been navigating through most of her 69 years without sight.
Alperin doesn’t let
herself be limited by her disability. Her spirit and her laugh are
contagious – she is genuinely happy and content, loves her family, and
enjoys her friends and neighbors. She has some tools she uses, like a
Braille machine and an Amazon Echo, but she mostly relies on her other
senses and strong sense of herself.
Alperin’s brother,
Roger, was born blind, but Carol could see until she was 12 years old.
Surgery wasn’t an option in 1959 – the medical procedures were costly
and not as advanced as they are now. But, both Alperin and her brother
had gifts to share, and they didn’t let the lack of sight stop them.
“Roger had the gift of music,” said Alperin. “He could sing! You want me to sing Long Ago and Far Away. I’m not a singer.”
Alperin has many
accomplishments of her own. She went to school, taught sixth-grade for a
while, played the piano, and was involved in swimming and gymnastics.
“I was an active
enough child to maintain a distance judgment. I biked on country roads
so my balance was always good, and I loved swimming and gymnastics –
especially the trampoline.”
Alperin even passed
the junior lifesaving test in swimming after she lost her sight, but the
teacher wouldn’t give her the certificate.
“She had a question about my
blindness,” said Alperin. “But, I know I passed.”
Even though she lost
her sight at 12, Alperin didn’t have “cane use” until she was 16. It was
then, at 16 or 17, that she had one of her fondest volunteer memories:
Working with babies. “That was such a delight,” said Alperin.
One of the things
Alperin learned from her mother prior to losing her sight, which she
still really enjoys and excels at, is knitting. She knits beautiful
sweaters, ponchos, capes, hats and purses. She even makes the buttons
herself. The details in her knitting projects are beautiful – roses,
fringe, hand-knit and clay buttons, and bags that are fully lined with
fun embellishments.
“My mom started
teaching me knitting before I went totally blind, the summer before I
lost my vision. I like to find a pattern and modify it a bit. I started
making baby sweaters as gifts and a lot of women had their baby’s first
pictures done in them.”
Currently she is
working on dishclothes and washcloths for babies and for an organization
she loves working with, Vision Loss Resources. Alperin loves to share
her talent in helping and teaching others. It’s there that she makes the
“sculpey clay buttons…you just roll and mold it, poke holes in it, and
then bake it,” she says.
“We do lots of
projects at Vision Loss Resources,” she said. “It’s a wonderful place.
They even have adaptive quilting and make soaps with scents mixed in.”
Alperin enjoys
interacting with others and has shown many people how to knit, crochet,
and work with different crafts. She’s inspired by motivating others in
being creative, especially other people who are blind. She wants them to
know there are not as many limitations as they think there are. She
also loves animals, reading, sewing, writing, plants, and enjoys music.
But, she has a genuine helping spirit. She really feels truly rewarded
in challenging others to be creative and make their lives better.
Alperin was just about to enter seventh-grade when her sight issues started. She described it as a “slow shutter.”
“It was the beginning
of the school year,” says Alperin. “I could still see light and vibrant
colors, and the sun shining off of bright colors. The
loss of vision would come on suddenly and could happen at any time. For
a time, my eyes would open back up. It would take a couple days and
still be blurry or seem cloudy.”
Just being in school,
or anywhere, was hard. You have to go up and down stairs, or walk on ice
in the winter, or deal with uneven pavement. The types of things most
people just take for granted they’ll see ahead of time. When your sight
is suddenly changed, it makes everything more difficult. Since it came
without warning, it was also scary, and hard for the other kids to
understand.
“In school, I was the
one who was different. The kids were not unkind, just thoughtless. Once
they found out, they were right there for me.”
Eventually, her sight
left her completely, but she never let that stop her. She always kept a
light in her spirit, and she never let it make her feel like she wasn’t
good enough. When asked how she knew her sight wasn’t going to return
that last time, she said she could just tell.
“It was like frosted
glass. The depth was whiter. There was a difference in the depth of the
fog,” said Alperin. “I was sewing, of all things, when it happened. I
just knew the vision wasn’t going to come back that time. I sensed it.”
Alperin wasn’t able to
graduate from Brooten High School because of her disability, but she
still attends high school reunions with the class of 1965. Even though
she had to move, and still ended up getting a teaching degree, Brooten
High School will always be a part of her. She has lifelong friends from
high school that have never forgotten her.
“I’m grateful for not
being isolated in a school for the blind,” said Alperin. “But they did
learn better coping skills. I wasn’t around any other blind kids, except
for my brother. And blind women have more insecurities, especially in
big schools.”
Alperin may have her
own issues, but she happily helps her husband of 46 years, Stan, as his
caregiver. She likes to joke that they met on a “blind date” all those
years ago, and they support each other and have a friendship that only
comes with many years of being together.
They
also raised three children together, two daughters and a son, and have
five grandchildren. She became a stay-at-home mom after she had
children. She’s very devoted to her family. She also has her cat,
Cinnamon, who she adores.
Cinnamon
It’s true that your other senses are stronger when you
lose your sight, but it’s still very difficult in a world that operates
for people who can see.
“I do use sound a lot,” said Alperin. “The television, music, an open window, can help me navigate better.”
Moving from their
house in Brooklyn Park to an assisted living building in Maple Grove in
the last few months has had Alperin learning new surroundings.
“We had to make a
choice for Stan. He has intense OCD, and other physical problems. Maple
Grove is nice, and has more of a town feeling, but transportation is
harder because we’re farther out. But, we get some housekeeping, and
help with laundry and medications. I like that it’s very woodsy and
lodge-like, but navigating in a new apartment with an angled kitchen has
been hard. But, the love and community feeling here…the people are
amazing. We help each other.”
She’s glad to help
Stan, but when she gets overtired, it’s harder. To try and rejuvenate
when she needs it, she does take time off occasionally.
“I do go to a support group, and I try to take a long
weekend every three months or so at a Christian retreat. It’s all blind
people there or partially sighted people.”
Alperin has never let her loss of sight define her. She’s happy and is both confident and humble.
“I don’t have to
impress people,” Alperin said. “I don’t need to make a big deal out in
public. It isn’t that we go out to set an example. We choose other
adaptations to be the person we are. To stay the person we are. The way I
start every day is to think of three positive things. It gets my day
going.”
Everyone has their
obstacles and challenges in life, but Alperin has faced each challenge
and kept a positive attitude throughout.
“You have to go
through the fire sometimes to get to the glory,” said Alperin. “You’re a
person first. When people lose their vision, they lose touch with
themselves. They get so upset with their vision loss. They don’t realize
what they can do.”
While most of us can
see things unfolding before our eyes, Alperin has had to do it in the
dark. The funny thing though is that in some ways, she actually sees
things more clearly than those of us who can physically see.
“The one thing I want
people to see is that life doesn’t stop when you have a disability,”
said Alperin. “Everyone has strengths. There are so many people who are
so awesome.”
Carol with some of her projects.